CONFERENCE VIDEOS
2022 SIMONS SEARCHLIGHT ANNUAL FAMILY CONFERENCE
Plenary Welcome with Dr. Wendy Chung
Managing Challenging Behaviors: A Q&A Panel Discussion
Planning for a Good Life: Using Charting the LifeCourse to Map Out a Successful Future
Promoting Learning and Communication in Children with Limited Language
Self-Care for The Caregiver: Why it Matters and How to Cultivate Opportunities to Make It Possible!
Plenary Closing: A Fireside Chat
CSNK2A1 Genetic Community Talks
2021 SIMONS SEARCHLIGHT VIRTUAL FAMILY & RESEARCH CONFERENCE
Genetic Therapies for the Neurodevelopmental Community & Discussion
Preparing for Clinical Trials in Neurodevelopmental Disorders
Recognizing Anxiety Behaviors and Calming Strategies & Discussion
Diagnosis and Treatment of Motor Speech Disorders & Discussion
The Role of Augmentative and Alternative Communication (AAC) Systems and Q&A
Understanding Problem Behaviors in Neurodevelopmental Disorders & Discussion
Developing Social and Pragmatic Skills in School Age Children & Discussion
Speed Sharing Brainstorm About What's Working for Managing Behaviors
Foundation Update with Jennifer Sills and Terri Jordan
OCNDS Researcher Presentations
Simons Searchlight Update on the OCNDS/CSNK2A1 Community
Panel Discussion with OCDNS/CSNK2A1 Researchers
Post-Conference Additional Q&A
2020 SIMONS SEARCHLIGHT VIRTUAL CONFERENCE
Session 1
General Session 1
Friday, August 7
2-4:00pm EST
Introduction Wendy Chung, MD, PhD
Challenging Behaviors Karen Bearss, PhD
Genetics 101 & How to read your lab report Juliann Savatt, MS, LGC & Rebecca Sheedy, LGC
Session 2
General Session 2
Friday, August 14
2-4:00pm EST
Introduction John Spiro, PhD
What is Simons Searchlight Misia Kowanda, PhD, MSc, CGC & LeeAnne Green Snyder, PhD
Introduction to SFARI Science John Sprio, PhD
iPSCs Julia Sommer, PhD
Animal Models Alice Luo Clayton, PhD & Britter Gundersen, PhD
Gene Therapies Wendy Chung, MD, PhD
Clinical Trials Paul Wang, MD
Session 3
CSNK2A1 Meeting
Sunday, August 16
2-4:00pm EST
Simons Searchlight CSNK2A1 Registry Results Jennifer Bain, MD, PhD
Understanding the effect of disease-causing mutations on CK2 function Heike Rebholz, PhD
Genotype-phenotype analysis of OCNDS Sampath Rangasamy, PhD
CSNK2A1 Foundation Update Jennifer Sills
2018 1ST FAMILY CONFERENCE
Dr. Wendy Chung
Dr. Volkan Okur
Emily Glogowski, MS. MCs, LCGC
Heike Rebholz, PhD
CSNK2A1 FOUNDATION
We are focused on finding a cure for Okur-Chung Neurodevelopmental Syndrome and ensuring affected individuals have the opportunities and supports necessary for happy and full lives. CSNK2A1 Foundation is operated and funded through a committed team of volunteers, advocates and researchers.
We are a 501(c)(3) non-profit organization. EIN #82-4220939.
© 2023 CSNK2A1 Foundation
1929 Van Ness Avenue
San Francisco, CA 94109
(415) 483-2488
DISCLAIMER
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