Okur-Chung Neurodevelopmental Syndrome is a rare genetic disorder first identified in 2016
CSNK2A1 Foundation is focused on finding a cure for Okur-Chung Neurodevelopmental Syndrome and ensuring affected individuals have the opportunities and supports necessary for happy and full lives
STORIES FROM OUR COMMUNITY
As an organization in the rare community, we recognize that by collaborating with others we can do more than acting alone.
We have committed to THRIVE to empower others in the rare community. Join us at thriveforrare.org