Okur-Chung Neurodevelopmental Syndrome is a rare genetic disorder first identified in 2016

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CSNK2A1 Foundation is focused on finding a cure for Okur-Chung Neurodevelopmental Syndrome and ensuring affected individuals have the opportunities and supports necessary for happy and full lives

Parker
Jules
Adriel
Brady
Cordelia

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CSNK2A1 Foundation is focused on finding a cure for Okur-Chung Neurodevelopmental Syndrome and ensuring affected individuals have the opportunities and supports necessary for happy and full lives.

RESOURCES

Discover resources available for those with Okur-Chung Neurodevelopmental Syndrome.

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Registering with CSNK2A1 Foundation will help to keep you up-to-date on the latest information regarding OCNDS.

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GeneDx is a proud sponsor of the CSNK2A1 Foundation.
For more information on rare and inherited diseases, visit www.genedx.com

As an organization in the rare community, we recognize that by collaborating with others we can do more than acting alone.
We have committed to THRIVE to empower others in the rare community. Join us at thriveforrare.org