Roadmap to Rare Podcast
This is the Roadmap to Rare. Hosted by OCNDS parent Eric Finn, this podcast explores the reality of the rare-disease journey—sharing hope through real stories, real challenges, and research. This is our rare disease roadmap.
Every rare disease journey is different, but no family should have to navigate it alone.
On Roadmap to Rare, Eric sits down with parents, advocates, clinicians, researchers, and leaders in the rare disease community to talk about what the path really looks like—from diagnosis to advocacy, research breakthroughs, and everything in between.
Together, these conversations shine a light on the experiences that unite the rare disease community: resilience, determination, and hope for the future.
What You'll Hear on the Podcast
Real conversations with families navigating rare disease
Insights from researchers and clinicians working to advance science
Honest discussions about challenges, advocacy, and progress
Stories of resilience, connection, and hope
Whether you are a parent, caregiver, clinician, researcher, or advocate, Roadmap to Rare offers meaningful perspectives and a shared sense of purpose.
Podcast Episodes
Buzzsprout: https://www.buzzsprout.com/2604852/episodes/19038997
Spotify: https://open.spotify.com/episode/2Y1qwBDJYOS4YAjrq6Gh2g?si=5fkd72voSMCBZMlRVNWMeg
Stay updated— follow us for new episodes!
Have a Question or Topic Suggestion?
Have a question or a topic you'd like featured on the podcast? Fill out this form or send us an email at podcast@csnk2a1foundation.org.
Your ideas help shape the conversations that matter most to the rare disease community.