Educational Supports

Talking about OCNDS in the Educational Setting

Disclaimer: These slides and script are for informational purposes only and should not be considered medical, legal, or educational advice. Every individual with OCNDS has unique needs, and we encourage families to consult with healthcare providers, therapists, and educators to determine the best support and interventions for their child.


The Parent Advisory Board, in collaboration with Deanna Heuring, Ed.S., created these educational slides and script to empower families affected by OCNDS with the knowledge and confidence to advocate for their loved ones. Understanding OCNDS can be overwhelming, and we want to equip parents and caregivers with clear, accessible information to help them navigate key areas like therapy, education, and support services.


Our goal is to help families speak confidently about OCNDS, ensuring that educators, therapists, and medical professionals understand their child's unique needs. These slides also provide an opportunity for families to actively participate in shaping their child’s educational programs.


By using these resources, families can effectively communicate, advocate, and collaborate with professionals to ensure their child receives the best possible support. Knowledge is power, and we hope these slides help families feel more prepared, informed, and supported on their journey with OCNDS.


We designed informational slides and a script to help you confidently communicate your child’s needs during any meetings with school personnel. You can download the slides and the script below. If you intend to present the slides live on a computer, please email info@csnk2a1foundation.org and we will provide you a copy for use.

Using the Script and Slides to Talk About OCNDS in the Educational Setting. Follow these steps to personalize and use it effectively:


1. Prepare in Advance


  • Review the script and insert your child’s name where indicated.
  • It is important to include personal details to give better insight into your Child’s needs. (See Slide 5 and Slide 8)
  • Make a list of the therapies your child has received and/or currently participates in (e.g., speech therapy, occupational therapy, physical therapy, behavioral therapy, etc.). (See Slide 6)
  • Note the number of hours per week your child receives each therapy if they are receiving therapy outside of school. (See Slide 6)
  • Identify any areas where additional support or coordination is needed. (See Slide 9)


2. Stay Open to Discussion


  • Be prepared to answer questions and provide any necessary documentation about your child’s therapies.
  • If needed, ask for specific action steps or follow-up dates to ensure collaboration happens.


By using this script, you can advocate for a well-coordinated approach that supports your child’s success in school and beyond.

  • A guide for educators on okur-chung neurodevelopmental syndrome ( ocnds ) and educational support

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