Vanessa Vogel-Farley maintains a broad knowledge of child development, neuroscience/psychology research, and administration, as well as expertise in non-profit and research operations, patient advocacy and support, and non-profit management. She possesses 20 years of experience in data collection methods and research operations. Her research interests have centralized around the processes associated with brain development and genetic factors that can affect normal development. She is passionate about the value of the patient’s voice in research, drug development, clinical trial design, development of related legislation, and quality of life decisions. She advocates for standardized data collection across diseases toward interoperability, data sharing, collaboration with other advocacy groups, and sharing resources whenever possible.
Vanessa Vogel-Farley
SCIENTIFIC ADVISORY BOARD
