INFORMATIONAL VIDEOS
Parent Education Webinar Series - Alternative Communication 101
Q&A with Simons Searchlight about our natural history study
How to read your genetics lab report (gene change)
Dr Wendy Chung explains, "You must represent yourself in these studies."
Learn how to complete your Simons Searchlight account
Families partnering with scientists
Music Therapy 101
Reed Sisters Face Okur Chung Diagnosis
RARE HUMANS: Turning Hope into Action
Equine Therapy 101
Growth Hormone & OCNDS, 2022
Additional Q&A from the 2022 Conference
Rare Disease Day
Meet Dr. Rushing June 2023
CSNK2A1 FOUNDATION
We are focused on finding a cure for Okur-Chung Neurodevelopmental Syndrome and ensuring affected individuals have the opportunities and supports necessary for happy and full lives. CSNK2A1 Foundation is operated and funded through a committed team of volunteers, advocates and researchers.
We are a 501(c)(3) non-profit organization. EIN #82-4220939.
© 2023 CSNK2A1 Foundation
1929 Van Ness Avenue
San Francisco, CA 94109
(415) 483-2488
DISCLAIMER
The information provided is not intended to be a substitute for professional medical advice, diagnosis or treatment. Never disregard professional medical advice, or delay in seeking it, because of something you have read on this website. Read more...
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