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(415) 483-2488
CSNK2A1 Foundation Logo

Understanding
Okur-Chung Neurodevelopmental Syndrome

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CSNK2A1 Foundation Logo

Understanding
Okur-Chung Neurodevelopmental Syndrome

  • About OCNDS
    • What is OCNDS?
      • FAQs
      • Informational Handouts
    • For Clinicians
      • Clinician Information
      • How to Help Patients Access Genetic Testing
      • Project FIND-OUT
    • About CSNK2A1 Foundation
      • Boards
      • Staff
      • Transparency
    • News & Updates
      • Newsletters
      • In The Press and Media
      • Our Voice
    • OCNDS Compassion Initiative
    • FDA Patient Listening Session
  • For Families
    • OCNDS 101
      • Common Questions
      • What is a VUS/VOUS?
      • OCNDS Worldwide Cases
      • Recommended Treatment
      • Symptom Checker
      • Newly Diagnosed
    • Get Involved
      • Family Research Opportunities
      • Become a Regional Ambassador
      • Join the Parent Advisory Board
    • Resources
      • Recommended Treatment
      • OCNDS Clinician Directory
      • Educational Supports
      • Research Explained
      • Science Snapshots
      • Understanding the Significance of Your Genetic Variant
      • Registry Dashboard
      • Once Upon A Gene Podcast
      • Transition to Adulthood Resources
      • OCNDS Awareness Card
      • Rare Disease Day School Toolkit for Children 8-12
      • Adults with OCNDS Information & Resources
      • Videos
    • US Resources
      • Guardianship
    • Find Your Community
      • The Faces of OCNDS
      • Contact Registry
      • Family Stories
      • OCNDS Family Zoom Calls
      • #MilestoneMondays
  • For Researchers
    • Research Resources
      • Published Research
      • Research Toolbox
      • CK2 substrates: Brain
      • Research Strategy
    • Grants
      • Funding Opportunities
      • Funded Research
    • Current Initiatives
      • Simons Searchlight
      • TGEN OCNDS Research Program
    • Get Involved
      • Quarterly Scientific Roundtable
      • Conferences
      • Industry Partnerships
  • Take Action
    • Donate
      • Donate Now
      • PayPal Giving Fund
    • Events
      • Golf Tournament
      • Conference 2025
    • Participate in Research
      • Roles in Research
      • Natural History Study
      • Sample Collection
      • Brain Donation
      • Citizen Health
      • Family Research Testimonials
      • Disease Concept Model
    • Advocate
      • Volunteer
      • Share Your Story
      • OCNDS Awareness Day
  • Contact Us
  • Shop

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CSNK2A1 Foundation

We are focused on finding a cure for Okur-Chung Neurodevelopmental Syndrome and ensuring affected individuals have the opportunities and supports necessary for happy and full lives. CSNK2A1 Foundation is operated and funded through a committed team of volunteers, advocates and researchers.

We are a 501(c)(3) non-profit organization.
EIN #82-4220939.

Contact Information

Address: 1929 Van Ness Avenue, San Francisco, CA 94109


Phone: (415) 501-0147


Email: info@csnk2a1foundation.org

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The information provided is not intended to be a substitute for professional medical advice, diagnosis or treatment. Never disregard professional medical advice, or delay in seeking it, because of something you have read on this website. Read more...

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