Here’s what you can expect:
Below is important registration information:
If you have any questions about the conference, you can reach out to Simons Searchlight at conference@simonssearchlight.org.
About Simons Searchlight and joining the study
Simons Searchlight is an international research study that is on a mission to speed up the genetic science of disorders related to autism and brain development.
To grow knowledge around CSNK2A1 and CSNK2B, we encourage all families to register in Simons Searchlight.
The process to join is simple and is done online — all you have to do is register, upload your genetics result report, and complete surveys, including a phone interview with a genetic counselor.
The best part is that Simons Searchlight is sharing all this information with medical professionals and researchers who are interested in studying CSNK2A1 and CSNK2B. We know that in rare disease research, it is so important for everyone to be counted – that means YOU!
Learn more about Simons Searchlight here.
Download a pdf of the below agenda
here.
We are focused on finding a cure for Okur-Chung Neurodevelopmental Syndrome and ensuring affected individuals have the opportunities and supports necessary for happy and full lives. CSNK2A1 Foundation is operated and funded through a committed team of volunteers, advocates and researchers.
We are a 501(c)(3) non-profit organization. EIN #82-4220939.
© 2023 CSNK2A1 Foundation
1929 Van Ness Avenue
San Francisco, CA 94109
(415) 483-2488
The information provided is not intended to be a substitute for professional medical advice, diagnosis or treatment. Never disregard professional medical advice, or delay in seeking it, because of something you have read on this website. Read more...
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