NATURAL HISTORY STUDY

The Simons Variation in Individuals Project - Simons VIP - is an online community that supports families with rare genetic changes (also called “genomic variants”) associated with features of autism and developmental delay. They provide access to resources, information, and family support. Simons VIP also provides an opportunity for families to participate in research.

We highly encourage our community to register with Simons VIP Connect to participate in the SIMONS VIP long term natural history study. By participating in the SIMONS VIP study, we can improve our community’s understanding of OCNDS.

If you have any questions and would like to talk with a member of our community who is participating in the SIMONS VIP study, please contact us and we will put you in contact with a community member to talk with about their experience.

“I have had great interactions with my SIMONS VIP coordinator. SIMONS VIP has made it easy for us to participate in the research program benefiting those with OCNDS because they are able to accommodate and work around our crazy life schedule.”  R. Cramer, mom of 4 year child with OCNDS