CSNK2A1 Foundation is focused on finding a cure for Okur-Chung Neurodevelopmental Syndrome and ensuring affected individuals have the opportunities and supports necessary for happy and full lives.


Collaborative Approach

Our mission will be achieved by our OCNDS community working together as one.

We have a 3-board structure that supports our ability to accelerate the path to treatment: It consists of the BOARD OF DIRECTORS, SCIENTIFIC ADVISORY BOARD and our PARENT ADVISORY BOARD.

We have extensive and lofty objectives for the next 3 years which will only be achieved by the entire OCNDS community working together.


The best way to predict the future is to create it.

Objectives and Goals 2021-2023

CSNK2A1 Foundation is operated and funded through a committed team of volunteers, advocates and researchers. CSNK2A1 Foundation is a 501(c)(3) non-profit organization. EIN #82-4220939


Individually, we are one drop. Together, we are an ocean.

What is Okur-Chung Neurodevelopmental Syndrome? What are the symptoms of OCNDS? Learn more!
Registering with CSNK2A1 Foundation will help to keep you up-to-date on the latest information regarding OCNDS.

Help us find a cure and make a meaningful change in the lives of individuals affected by OCNDS. Donate today!

CONNECT WITH US | facebook | instagram | twitteremail 

Translate »