by Rhiannon Cramer
The sun rises up, the sun lowers down
The child does not sleep
The child breaths and that is our need
The sun rises up again
The physical therapist comes again
The occupational therapist comes again
The doctor appointments to be made again
The sun is at midday
The feeding therapist comes again
The vision therapist comes again
The speech therapist comes again
The sun is now near the end
The tear filled cuddle fit in
The work fit in
The chores fit in
The sun lowers down once again
But where was the day?
But where was the fun?
But where was the freedom for the child?
The child does not know otherwise
These are the days full of therapists that keep the child going
These are the days full of doctors that keep the child going
These are the days full of phone calls that keep the child going
These days, allow for those future days
Those future days are what we work for
Those future days are for the fun
Those future days are freedom for the child
The future days are soon to come
We are focused on finding a cure for Okur-Chung Neurodevelopmental Syndrome and ensuring affected individuals have the opportunities and supports necessary for happy and full lives. CSNK2A1 Foundation is operated and funded through a committed team of volunteers, advocates and researchers.
We are a 501(c)(3) non-profit organization. EIN #82-4220939.
© 2023 CSNK2A1 Foundation
1929 Van Ness Avenue
San Francisco, CA 94109
(415) 483-2488
The information provided is not intended to be a substitute for professional medical advice, diagnosis or treatment. Never disregard professional medical advice, or delay in seeking it, because of something you have read on this website. Read more...
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