Registering with CSNK2A1 Foundation will help to keep you up-to-date on the latest information regarding OCNDS.

Contact Registrants will be informed about opportunities to participate in research. You will also receive family meeting announcements, special mailings, and information regarding any discoveries about OCNDS impacting care decisions.

Our Contact Registry database is not shared with external organizations. We will not use the Contact Registry for marketing or fundraising. We may use aggregate data from the Contact Registry to publish statistics about the incidence of OCNDS.