Drive for Diagnosis – CSNK2A1 Foundation

FORE! Reflections from our Drive for Diagnosis Golf Classic

April 25, 2019September 28, 2020Jennifer Sills1 Comment

It was a warm and sunny day on Monday April 22, 2019 in Tarzana, California. It was a perfect day for golf! We had a tremendous turn out for the Drive for Diagnosis Golf Classic at El Caballero Country Club. 113 Golfers came out for our 1st Golf Classic to support our collaborative efforts...

2019 Drive for Diagnosis Golf Classic

October 21, 2018December 5, 2019Jennifer Sills

Thank you to all of our sponsors for making our 1st Drive for Diagnosis April 22, 2019 Golf Classic a huge success! Thank you for your support and generosity! With your sponsorship we are turning Hope Into Action!...

President, Jennifer Sills profiled by Global Genes

October 23, 2020October 23, 2020Jennifer SillsLeave a comment

We are a proud member of the Global Genes Foundation Alliance. Global Genes’ mission is to connect, empower and inspire the rare disease community. As an Alliance Foundation, we have the opportunity to collaborate and exchange best practices with other rare disease organizations to drive better outcomes for the rare disease community. Global Genes...

We are excited to launch our Parent Education Webinar Series

October 9, 2020October 9, 2020Jennifer SillsLeave a comment

We are excited to launch our Parent Education Webinar Series. As parents and patients try to navigate a new diagnosis, they can be overwhelmed with information. We want to provide informational videos to help parents and patients navigate their rare diagnosis and inform them about different types of interventions available. Our first webinar is...