Drive for Diagnosis Golf Classic 2020

2020 Drive for Diagnosis Golf Classic

December 5, 2019April 8, 2020Jennifer Sills

With your support, all profits raised will go to ongoing CSNK2A1 Foundation sponsored research. Last year’s tournament allowed us to start the CSNK2A1 Foundation Research Program at TGen. Dr. Vinodh Narayanan and his team through their research are determining whether the symptoms of OCNDS are reversible. The CSNK2A1 Foundation and TGen are working together...

President, Jennifer Sills profiled by Global Genes

October 23, 2020October 23, 2020Jennifer SillsLeave a comment

We are a proud member of the Global Genes Foundation Alliance. Global Genes’ mission is to connect, empower and inspire the rare disease community. As an Alliance Foundation, we have the opportunity to collaborate and exchange best practices with other rare disease organizations to drive better outcomes for the rare disease community. Global Genes...

We are excited to launch our Parent Education Webinar Series

October 9, 2020October 9, 2020Jennifer SillsLeave a comment

We are excited to launch our Parent Education Webinar Series. As parents and patients try to navigate a new diagnosis, they can be overwhelmed with information. We want to provide informational videos to help parents and patients navigate their rare diagnosis and inform them about different types of interventions available. Our first webinar is...