1st family conference – CSNK2A1 Foundation

Day 2 Individually, we are one drop. Together, we are an ocean.

Final Thoughts on Our 1st CSNK2A1 Foundation Family Conference

September 17, 2018September 22, 2018Jennifer Sills1 Comment

We walked into the 1st CSNK2A1 Foundation Family Conference as strangers and we finished the weekend as lifelong friends. We now have friends (more like new family) that we can call on at anytime who will understand our excitement when our child hits a milestone, or will understand when its been a tough day...

1st CSNK2A1 Foundation Family Conference

September 5, 2018December 5, 2019Jennifer SillsLeave a comment

FAMILY CONFERENCE Aug 17-19, 2018 Dr. Wendy Chung Dr. Volkan Okur - Presenting Discovery of the Disease Heike Rebholz, PhD - Presenting Casein Kinase (CK2) - Jack of All Trades Emily Glogowski, MS. MCs, LCGC - Genetics 101 - Gene DX Day 1 Day 2 Day 3 ...

President, Jennifer Sills profiled by Global Genes

October 23, 2020October 23, 2020Jennifer SillsLeave a comment

We are a proud member of the Global Genes Foundation Alliance. Global Genes’ mission is to connect, empower and inspire the rare disease community. As an Alliance Foundation, we have the opportunity to collaborate and exchange best practices with other rare disease organizations to drive better outcomes for the rare disease community. Global Genes...

We are excited to launch our Parent Education Webinar Series

October 9, 2020October 9, 2020Jennifer SillsLeave a comment

We are excited to launch our Parent Education Webinar Series. As parents and patients try to navigate a new diagnosis, they can be overwhelmed with information. We want to provide informational videos to help parents and patients navigate their rare diagnosis and inform them about different types of interventions available. Our first webinar is...