For the first time, our community will come together for a weekend in New Jersey to collaborate, share stories and hear from doctors and researchers.
Our group will have the unique opportunity to meet 1:1 with Dr. Wendy Chung & Dr. Volkan Okur as well as have the opportunity to participate in research being conducted by SIMONS VIP. We will also hear Dr. Wendy Chung present findings from the SIMONS VIP OCNDS natural history study. There will be an opportunity to meet with other affected families, share our journeys and have those affected with OCNDS finally meet someone like them. We have invited highly regarded doctors and researchers to attend so they can learn more about OCNDS and our commnunity. Please feel free to pass the conference information to any family members, friends, providers or medical professionals that may be interested in attending and learning more about OCNDS.
Fri, Aug 17, 2018, 4:00 PM –Sun, Aug 19, 2018, 11:00 AM
Holiday Inn Clark - Newark Area
36 Valley Road
Clark, NJ 07066
Who should attend?
Anyone interested in OCNDS.
Can individuals under 18 years of age attend the weekend?
Absolutely. This is intended to be a family affair. During the conference presentations on Saturday, we will have a separate room across from our meeting room staffed with caregivers to watch over those under 18 years of age so you can participate, learn and listen.
What is the cost of registration?
Each adult is $35. Each child 0-18 is $25.
What are my parking options at the event?
There is free parking at the Holiday Inn Clark.
What transportation options are available from Newark International Airport to Holiday Inn Clark and how much does it cost?
Holiday Inn Clark is about 12.4 miles from Newark International Airport. It takes about 20 minutes to get there from the airport. Using UberX or Lyft can cost around $24.00 for a one-way trip (depending on time of time and traffic). Using a taxi can cost around $32.00 for a one-way trip. You will need to arrange for your own transportation to and from the hotel.
How can I contact the organizer with any questions?
Email Jennifer at firstname.lastname@example.org with any questions or call Jennifer at (415) 265-2575.
What's the refund policy?
If you cancel 30 days prior to the event, you will receive a full refund. Any closer to the event, there is no refund.
THIS PAGE IS JUST FOR THE REGISTRATION FEE. PLEASE DO NOT FORGET TO BOOK YOUR HOTEL ROOM FOR THE EVENT.
We have negotiated a room rate of $129 plus tax which includes full American breakfast for up to 4 people each morning. In order to receive the special group rate, please call 1-888-465-4329 and ask for the CSNK2A1 Foundation and group code BY1. You can also make reservations by visiting the hotel's website: www.holidayinn.com/clarknj, entering your arrival and departure dates and entering the block code BY1 in order to receive the special group rate.
Why is there a registration fee?
We raised money to keep the conference fees at a minimum. We have had many kind and generous donors and sponsors. However, there are costs associated with hosting a family conference that the Foundation cannot fully cover.
What's included in your registration fee?
Included in your registration fee is the conference, dinner on Friday & Saturday night, lunch on Saturday, our group t-shirt, and supervision of children while adults attend the conference on Saturday.
When will I receive my ticket and group t-shirt?
Your email confirmation will be evidence of your purchase. We will distribute your group t-shirt at the Meet & Greet on Friday night.
Where can I find more CSNK2A1 Foundation merchandise?
If you would like to see more CSNK2A1 Foundation merchandise, go to our Shop.
DOWNLOAD PDF HERE → 1st CSNK2A1 Foundation Conference Itinerary