Last updated: 23 September 2018
Who We Are
We are CSNK2A1 Foundation, 1929 Van Ness Avenue, San Francisco, CA 94109, (415) 483-2488.
Our website address is: https://www.csnk2a1foundation.org
CSNK2A1 Foundation is a 501(c)(3) non-profit organization. EIN #82-4220939.
The information provided on our website is not intended to be a substitute for professional medical advice, diagnosis or treatment. Never disregard professional medical advice, or delay in seeking it, because of something you have read on this website. Never rely on information on this website in place of seeking professional medical advice. No images on this site may be used or reproduced without the written consent of CSNK2A1 Foundation.
Using the website
What personal data we collect and why we collect it
Like many site operators, we collect information that your browser sends whenever you visit our site. This data may include information such as your computer’s Internet Protocol (“IP”) address, browser type, browser version, the pages of our site that you visit, the time and date of your visit, the time spent on those pages and other statistics. In addition, we may use third party services such as Google Analytics that collect, monitor and analyze this. You may review their privacy police here: https://policies.google.com/privacy
We collect personal data, such as name, email address, personal account preferences; transactional data, such as purchase information; and technical data.
Our Contact Registry database is not shared with external organizations. We will not use the Contact Registry for marketing or fundraising. We may use aggregate data from the Contact Registry to publish statistics about the incidence of OCNDS. Contact Registrants will be informed about opportunities to participate in research. You will also receive family meeting announcements, special mailings, and information regarding any discoveries about OCNDS impacting care decisions.
If you participate in our Contact Registry you agree to allow CSNK2A1 Foundation to store information about yourself and/or your dependent with OCNDS. Your data may be used in aggregate to compile and publish statistics about the incidence of OCNDS.
We keep Donation form submissions for 2 years for customer service purposes, and we do not use the information submitted through them for marketing purposes.
When visitors leave comments on the site we collect the data shown in the comments form, and also the visitor’s IP address and browser user agent string to help spam detection.
No images on this site may be used or reproduced without the written consent of CSNK2A1 Foundation.
If you upload images to the website, you should avoid uploading images with embedded location data (EXIF GPS) included. Visitors to the website can download and extract any location data from images on the website.
We keep contact form submissions for 2 years for customer service purposes, but we do not use the information submitted through them for marketing purposes.
If you leave a comment on our site you may opt-in to saving your name, email address and website in cookies. These are for your convenience so that you do not have to fill in your details again when you leave another comment. These cookies will last for one year.
If you have an account and you log in to this site, we will set a temporary cookie to determine if your browser accepts cookies. This cookie contains no personal data and is discarded when you close your browser.
When you log in, we will also set up several cookies to save your login information and your screen display choices. Login cookies last for two days, and screen options cookies last for a year. If you select “Remember Me”, your login will persist for two weeks. If you log out of your account, the login cookies will be removed.
If you edit or publish an article, an additional cookie will be saved in your browser. This cookie includes no personal data and simply indicates the post ID of the article you just edited. It expires after 1 day.
Embedded content from other websites
Articles on this site may include embedded content (e.g. videos, images, articles, etc.). Embedded content from other websites behaves in the exact same way as if the visitor has visited the other website.
We use Google Analytics, a web analytics service offered by Google that tracks and reports website traffic. You may review their privacy police here: https://policies.google.com/privacy
What we collect and store when you shop on our website
We collect information about you during the checkout process on our store.
While you visit our site, we’ll track:
- Products you’ve viewed: we’ll use this to, for example, show you products you’ve recently viewed
- Location, IP address and browser type: we’ll use this for purposes like estimating taxes and shipping
- Shipping address: we’ll ask you to enter this so we can, for instance, estimate shipping before you place an order, and send you the order!
When you purchase from us, we’ll ask you to provide information including your name, billing address, shipping address, email address, phone number, credit card/payment details and optional account information like username and password. We’ll use this information for purposes, such as, to:
- Send you information about your account and order
- Respond to your requests, including refunds and complaints
- Process payments and prevent fraud
- Set up your account for our store
- Comply with any legal obligations we have, such as calculating taxes
- Improve our store offerings
- Send you marketing messages, if you choose to receive them
If you create an account, we will store your name, address, email and phone number, which will be used to populate the checkout for future orders.
We generally store information about you for as long as we need the information for the purposes for which we collect and use it, and we are not legally required to continue to keep it. For example, we will store order information up to 2 years for tax and accounting purposes. This includes your name, email address and billing and shipping addresses.
We will also store comments or reviews, if you choose to leave them.
Who on our team has access
Members of our team have access to the information you provide us. For example, both Administrators and Shop Managers can access:
- Order information like what was purchased, when it was purchased and where it should be sent, and
- Customer information like your name, email address, and billing and shipping information.
Our team members have access to this information to help fulfill orders, process refunds and support you.
We accept payments through PayPal. When processing payments, some of your data will be passed to PayPal, including information required to process or support the payment, such as the purchase total and billing information.
Who we share your data with
We do not share the personal data you provide us in contact forms or the Contact Registry with anyone. If you purchase products in our shop, we share information with third parties who help us provide our orders and store services to you; for example, our payment gateway, product fulfillment company, and shipping providers.
How long we retain your data
If you leave a comment, the comment and its metadata are retained indefinitely. This is so we can recognize and approve any follow-up comments automatically instead of holding them in a moderation queue.
For users who register on our website, we also store the personal information they provide in their user profile. All users can see, edit, or delete their personal information at any time (except they cannot change their username). Website administrators can also see and edit that information.
What rights you have over your data
If you have an account on this site, or have left comments, you can request to receive an exported file of the personal data we hold about you, including any data you have provided to us. You can also request that we erase any personal data we hold about you. This does not include any data we are obliged to keep for administrative, legal, or security purposes.
Where we send your data
How we protect your data
Our website uses the most comprehensive security solution available. It incorporates a 24/7 firewall and malware scanner to protect your data. The security of your personal information is important to us, but remember that no method of transmission over the Internet, or method of electronic storage, is 100% secure. We cannot guarantee its absolute security. We are not responsible for the republishing of the content found on this site on other websites or media without our permission.