Receiving an OCNDS diagnosis can be overwhelming and heartrending. Our Parent Advisory Board (PAB) understands how difficult it can be to navigate an OCNDS diagnosis. To help families on this journey, our PAB developed an OCNDS/CSNK2A1 Foundation brochure.
This brochure can be shared with your family, friends, teachers, providers, and clinicians to learn more about OCNDS. Please share our new brochure far-and-wide.
Thank you to our PAB for creating this helpful tool for our community. It will be available in multiple languages soon.