Join other OCNDS families for a monthly Zoom call to talk about all things OCNDS. All languages welcome! We are using a new AI technology to enable participation across languages. When: Oct 23, 2021 08:00 AM Pacific Time (US and Canada) (Check your time zone) Register in advance for this meeting here. After...
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Join other OCNDS families for a monthly Zoom call to talk about all things OCNDS. All languages welcome! We are using a new AI technology to enable participation across languages. When: Sep 25, 2021 08:00 AM Pacific Time (US and Canada) (Check your time zone) Register in advance for this meeting here. After...
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Back by popular demand is another live Q&A with Cora Taylor, PhD! On Friday, October 15 from 12:00 pm – 1:00 pm ET (Eastern Time Zone/USA), Taylor will answer your questions about education and early intervention, diagnosing autism, sleep, feeding, toileting, and behavioral interventions for people with rare neurodevelopmental disorders. This will stream on...
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Join us this Sunday, August 29th, for our monthly OCNDS Family Zoom meeting at 8:30 AM Pacific Time. Pre-register for this talk here. ALL languages welcome. We will be testing a new AI platform that will live caption the discussion. Come and share about back-to-school, concerns about the new Delta variant, and any challenges...
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REGISTRATION IS OPEN for our Virtual Run, Walk & Roll on October 16th & 17th. Register here Join our worldwide OCNDS community on OCTOBER 16TH & 17TH for our MOVE INTO ACTION for OCNDS Run, Walk & Roll Fundraiser! This event will help raise awareness and fund research for OCNDS. DO I NEED TO...
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Save the Date! For the German-speaking Family Zoom Call Saturday, August 28, 2021 8pm – Vienna time...
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Save the Date for the Drive for Diagnosis 2022 Golf Classic Benefitting all CSNK2A1 Foundation Research Programs Monday, April, 11 2022 El Caballero Country Club Tarzana, California...
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Thank you to everyone who participated in the CSNK2A1 Foundation/OCNDS Research 2021 Update. We had such an overwhelming response that we weren’t able to answer all the questions posed in the Q&A session. Dr. Wendy Chung, Dr. Volkan Okur, Dr. Heike Rebholz, and Dr. Isabel Dominguez are joining us for an additional Question &...
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Join Canadian Parent Advisory Board members, Elisabeth Mellinger and Michelle Proctor-Simms, for a Canadian family zoom meet-up on September 20th at 5pm ET to talk and share stories about raising a child with a rare syndrome in Canada. Topic: OCNDS/CSNK2A1 Canadian Family Meet up Time: Sep 20, 2021 05:00 PM Eastern Time (US and...
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Join Parent Advisory Board member, Rhiannon Cramer, for our monthly OCNDS family Zoom call where families can connect, ask questions and share their stories. This Friday, July 9th, at 4pm Eastern Time (here is a website to convert the time to your time zone: https://www.thetimezoneconverter.com/) Topic: CSNK2A1/OCNDS Monthly Family Zoom Call Time: Jul 9,...
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