Dear Friends, Supporters, and Donors, Today, November 30th is Giving Tuesday. Giving Tuesday is a global generosity movement unleashing the power of people and organizations to transform their communities and the world. On this #GivingTuesday, will you help us find a cure for OCNDS and ensure no family walks alone on this journey? "Nothing about...
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Join us for our last OCNDS Family Zoom Meeting of 2021. We will discuss successes, challenges, and our hopes for 2022. This meeting is only for primary caregivers, guardians, and those living with OCNDS. When: Dec 18, 2021, 08:00 AM Pacific Time (US and Canada) Register in advance for this meeting here After registering,...
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In partnership with Simons Searchlight, we are excited to announce our Annual Family Conference August 4-7, 2022 in Baltimore, Maryland. More details to follow....
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No Family Walks Alone "Nothing about Rare Disease is simple - not the diagnosis, not the daily care, not the long term." For #GivingTuesday, we are highlighting the power of connection when living with a rare disease. Every rare disease family has a unique story to tell about their rare disease journey. On average,...
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Join other OCNDS families for our NOVEMBER family monthly Zoom call to talk about all things OCNDS. All languages welcome! We are using a new AI technology to enable participation across languages. The translation software works best if you use a laptop or a computer. These calls are only for those with OCNDS and...
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On October 16th & 17th, our global OCNDS community will MOVE INTO ACTION for our OCNDS Run, Walk & Roll Fundraiser! This event will help raise awareness and fund research for OCNDS. We set a goal of $10,000. We surpassed our goal and raised over $18,000. Thank you to everyone who donated and for...
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Join other OCNDS families for a monthly Zoom call to talk about all things OCNDS. All languages welcome! We are using a new AI technology to enable participation across languages. When: Oct 23, 2021 08:00 AM Pacific Time (US and Canada) (Check your time zone) Register in advance for this meeting here. After...
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Join other OCNDS families for a monthly Zoom call to talk about all things OCNDS. All languages welcome! We are using a new AI technology to enable participation across languages. When:Â Â Sep 25, 2021 08:00 AM Pacific Time (US and Canada) (Check your time zone) Register in advance for this meeting here. After...
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Back by popular demand is another live Q&A with Cora Taylor, PhD! On Friday, October 15 from 12:00 pm – 1:00 pm ET (Eastern Time Zone/USA), Taylor will answer your questions about education and early intervention, diagnosing autism, sleep, feeding, toileting, and behavioral interventions for people with rare neurodevelopmental disorders. This will stream on...
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Join us this Sunday, August 29th, for our monthly OCNDS Family Zoom meeting at 8:30 AM Pacific Time. Pre-register for this talk here. ALL languages welcome. We will be testing a new AI platform that will live caption the discussion. Come and share about back-to-school, concerns about the new Delta variant, and any challenges...
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